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RAS-relaterte syndrom

RAS-relaterte syndrom

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Som medlem i foreningen har du tilgang til vår lukkede Facebook-gruppe. Trykk på knappen over for å bli ledet til gruppen.

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Styret

Styreleder:

Grethe Dalgrav (Bærum, Viken)

grethedalgrav@yahoo.no

Tlf. 99590495

 

Styremedlemmer:

Vemund Kjørsvik (Tromsø, Troms og Finnmark)

kvkjorsvik@gmail.com

Tlf. 9504648

 

Gry Offernes (Bergen, Vestland)

offernesgry@gmail.com

Tlf. 48192211

 

Einar Fiksen (Ålvik, Vestland)

einar.fiksen@gmail.com

Tlf. 90881262

 

Judit Seim Røksund (Bømlo, Vestland)

juditroe@hotmail.com

Tlf. 41290174

 

Varamedlem:

Camilla Faksvåg Post

Tlf.

Kontakt

Epost til foreningen:
noonan@noonan.no

Vemund Kjørsvik
Styreleder
vemnoon@gmail.com
Tlf. 95064648

Kompetansesenteret Frambu

Kompetansesenteret Frambu er kompetansesenteret for Noonan syndrom.
Linker:
Hjemmesiden til Frambu
Diagnoseinformasjon hos Frambu

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